The what, when and how of orthopaedic registers: an introduction into register-based research

[摘要] Established in 1975, the Swedish Knee Arthroplasty Register was the first nationwide orthopaedic register and during the following 20 years, arthroplasty registers were established in other Nordic countries.1-5 The National Joint Registry for England, Wales, Northern Ireland and the Isle of Man (NJR) and the Dutch Arthroplasty Register were established in 2003 and 2007, respectively. Outside of Europe, other important arthroplasty registers include the Australian Orthopaedic Association National Joint Replacement Registry, which was established in 1999. Some arthroplasty registers contain information on primary and revision procedures for several joints, e.g. the Dutch Arthroplasty Register and the NJR, whereas other registers are specific for a given joint, e.g. the Swedish Hip Arthroplasty Register and the Danish Shoulder Arthroplasty Register. Moreover, there are other nationwide orthopaedic registers than arthroplasty registers. For instance in Norway, data on hip fractures are reported to the Norwegian Hip Fracture Register.6 The main purpose of registers is to collect information on patients, implants and procedures in order to monitor and improve the patient course and outcome of the specific procedure. During the last ten years we have seen development and implementation of disease- and procedure-specific, evidence-based quality indicator sets in registers, and outcomes have been subjected to national, regional and department specific clinical auditing. Annual reports from the registers give an overview of the data and quality indicators, disclosed with health professional interpretations and recommendations for improvement of quality.7,8 The quality indicators are used for hospital benchmarking.

[学科分类] 神经科学

[关键词] orthopaedic registers;data validity;survival analyses;bias and confounding;guidelines