Focusing on the penultimate step: increasing early lung transplant discussion in cystic fibrosis clinic to prepare patients for referral

[摘要] Lung transplant is a potential life-lengtheningoption for individuals with cystic fibrosis (CF)and advanced lung disease. However, referralfor transplant evaluation is not made for themajority of patients with CF with low lung function who die each year.1 Recently publishedconsensus guidelines from the CF Foundation identify early transplant discussion as acritical approach to optimise access to thistreatment option.2 This quality improvement(QI) intervention sought to improve education of patients with CF regarding transplantby increasing the frequency of outpatient CFclinic visits in which transplant is discussedwith patients with low lung function.

[学科分类] 药学

[关键词] healthcare quality improvement;paediatrics;patient education