Person-centred data collection methods to embed the authentic voice of people who experience health challenges

[摘要] The patient or consumer voice in healthcare has evolved from an aspiration tobecoming an expectation, which in somedeveloped countries is respected by inclusionin nationally auditable standards (AustralianCommission on Safety and Quality in HealthCare.1 2 Inclusive and appropriate researchabout patient perspectives requires skillsand resources to ensure that sound qualityassurance processes are designed, deliveredand evaluated. Understanding the characteristics of the population is key to ensuringappropriate representation of consumersin person-centred or patient involvementresearch methods. Vulnerable patients, thosewith ongoing health and literacy challenges,can benefit from advocacy, and often arenot used to being valued in terms of theirown views, lacking empowerment to presenttheir own opinions. Additionally, traditionalmethods need to be used more sensitively toensure that these consumers can be includedand participate equitably in the quality assurance process.

[学科分类] 药学

[关键词] patient-centred care;qualitative research;quality improvement;quality improvement methodologies;healthcare quality improvement