已收录 271075 条政策
 政策提纲
  • 暂无提纲
Barriers and facilitators to health and social care for BME service users and carers with rare neurodegenerative conditions
[摘要] Background: Although ethnic inequalities have been widely researched in many areas of health, barriers and facilitators to health and social care services for BME service users and carers with rare neurodegenerative conditions have not been researched.Aim: To identify the barriers and facilitators to health and social care for BME service users and carers with rare neurodegenerative conditions.Methods: 15 qualitative semi-structured interviews with service users and carers with motor neurone disease (MND), Huntington’s disease (HD), post-polio syndrome (PPS), multiple system atrophy (MSA), and Charcot Marie Tooth disease (CMT).Results: Pathways to care are described and barriers and facilitators that service users faced. Barriers included language, expectations of services, knowledge of services. Service users and carers also experienced isolation and stigma. The main facilitator to care was having a care co-ordinator.Conclusion: Although some of the barriers to care were specific to BME service users and carers, many of the barriers could have been faced by all service users with rare neurodegenerative conditions.
[发布日期]  [发布机构] University:University of Birmingham;Department:School ofHealth and Population Sciences, Department of Health Economics
[效力级别]  [学科分类] 
[关键词] H Social Sciences;HV Social pathology. Social and public welfare [时效性] 
   浏览次数:6      统一登录查看全文      激活码登录查看全文