In hospital but not forgotten: an exploration into children and young people’s narratives about their experiences of hospitalisation and hospital school

[摘要] Today, increasing numbers of children and young people (CYPs) live with chronic health conditions. A fact reflected in recent UK legislation which highlights the necessity of supporting these CYPs to fully access education. This study explores the experiences and perspectives of children and young people with chronic conditions (CYPCCs) regarding hospitalisation and hospital school. A narrative methodology was selected to explore the experiences of five hospitalised CYPCCs (aged 12 to 16 years) in addition to the meanings they ascribed to these experiences. Findings contribute important insights into CYPCCs' experiences of hospitalisation in relation to the following family, personal growth, health-related identity, relationships, coping, unpredictability and uncertainty and medical intervention and physical pain. This research makes a unique contribution to the field, in relation to the substantive topic (how CYPCCs perceive educational experiences in hospital settings) and the original application of a narrative research methodology. I argue the necessity for professionals to recognise CYPCCs as a potentially vulnerable group. Ethical issues concerning access to hospitalised CYPCCs for research purposes are highlighted and the value of narrative research with CYPs is endorsed. Implications for professional practice and research are discussed which seek to improve the educational opportunities, experiences and outcomes for CYPCCs.

[发布机构] University:University of Birmingham;Department:School of Education

[关键词] B Philosophy. Psychology. Religion;BF Psychology