Die beleweniswêreld van serebraal gestremde adolossente en die rol van psigososiale faktore in hulle sielkundige weerbaarheid

[摘要] English: Cerebral palsy is a complex condition and stressor, posing specific challenges to the affected individual and those involved. According to the literature, existing studies do not reflect the subjective experience and self-reporting of the person with a disability (Lutz & Bowers, 2005; Reeve, 2006; Singh & Ghai, 2009; Stalker, 2012; Tisdall, 2012; Watermeyer & Swartz, 2008; Watson, 2012). Thus, this study attempts to let the voices be heard of adolescents with cerebral palsy in order to gain new insight into the way in which they ascribe meaning to disability, manage their disability and overcome social, physical and emotional barriers. A qualitative approach within a psychofortigenic framework was followed in the study. The role of psychosocial factors in the psychological resilience of the adolescent with cerebral palsy was investigated in order to include the strength perspective. The theories, frameworks and models of the positive psychology paradigm were used as theoretical foundation to the study. Analysis and interpretation of data from the six semi-structured interviews was done by means of Interpretative Phenomenological Analysis (IPA). Furthermore, the identified themes were contextualised within an ecological systems framework according to intrapsychic, interpersonal and broader community factors. A preliminary conceptual process model was compiled from the cross-case analysis and describes the interrelationship and general dynamics of the experience of disability as well as the role of psychosocial factors (risk and protective factors) in the psychological resilience of the adolescents with cerebral palsy. The results confirm the impact and experience of disability as a multi-layered phenomenon and that each individual ascribes unique meaning to it according to personality traits, needs, emotional and social support, life contexts and life demands. The need of the adolescent with cerebral palsy to be recognised and treated as a unique individual is central in this study. The experience of disability within the broader social community does not only have a psycho-emotional effect on the person with a disability, but also psycho-social implications. Risk and protective factors are interacting in a multi-levelled way and the adolescent applies personal and contextual sources of power in order to ensure positive outcomes. The value of this study is letting the voices be heard of people with a disability regarding their lived reality of disability and psychological sources of resilience. The knowledge gathered in this study can also contribute to improved aid, support and understanding of the person with a disability.

[发布机构] University of the Free State