In Data We Trust: The Role and Utility of Dialysis Provider Databases in the Policy Process

[摘要] The American dialysis setting represents one of the most data-dense disease settings in the world (1). With the hope of better understanding ESRD, its treatment, and its associated costs, data are collected through public databases, registries, and proprietary databases. Although no one data source provides a complete picture, data help inform health policy, with different types of data providing different insights. In this review, we discuss the different data sources in the ESRD treatment setting, with a particular focus on the data coming from large dialysis organizations (LDOs) and their dialysis information systems (DISs). We discuss the benefits and limitations of these DISs and how they help inform healthcare policy.

[学科分类] 泌尿医学

[关键词] Bone marrow necrosis;Sickle cell disease;Hyperhemolysis syndrome