Adult cystic fibrosis patients' experiences of primary care consultations: a qualitative study

[摘要] ‘Expert patient’ programmes have been introduced in the UK as a new approach to chronic disease management for the 21st century. The average survival age of those with cystic fibrosis (CF) has steadily increased such that the majority of those with the condition now live into adulthood. Currently, specialist CF centres deliver the core of medical care, with primary care providing access to prescribed medicines, referral to other services, and care of non-CF needs, however, it is necessary to provide a more comprehensive service for adult CF patients, involving both specialist centres and primary care. To date, little is known about these expert patients' experiences of primary care.

[学科分类] 卫生学

[关键词] cystic fibrosis;doctor–patient relations;expert patient;primary health care;qualitative research