Development of an Online, Evidence-Based Patient Information Portal for Congenital Heart Disease: A Pilot Study

[摘要] ObjectivesIn response to an increased need for patient information on congenital heart disease in the Netherlands, we initiated a nationwide initiative to develop an online, evidence-based patient information portal, starting with a pilot project aimed at the subgroup of patients with congenital aortic and pulmonary valve disease.

[学科分类] 心脏病和心血管学

[关键词] patient information;shared decision-making;congenital heart disease;patient education tools;patient information portal;multidisciplinary approach;International Patient Decision Aid Standards development process;Delphi technique