Needs Assessment in Care of Adults With Anorectal Malformations and Exstrophy-Epispadias Complex in Germany
[摘要] Introduction: Medical needs of adults with anorectal malformations (ARM) and the exstrophy-epispadias complex (EEC) are not fully understood. Therefore, the aim of the study was to evaluate how affected individuals get along with the current national medical care and what their medical or social long-term requirements are.
[发布日期] [发布机构]
[效力级别] [学科分类] 儿科学
[关键词] anorectal malformation (ARM);exstrophy-epispadias complex (EEC);health care;long-term quality of life issues;medical aftercare [时效性]
