Transition in Patients with Congenital Heart Disease in Germany: Results of a Nationwide Patient Survey

[摘要] BackgroundA growing number of adults with congenital heart disease (ACHD) pose a particular challenge for health care systems across the world. Upon turning into 18 years, under the German national health care system, ACHD patients are required to switch from a pediatric to an adult cardiologist or an ACHD-certified provider. To date, reliable data investigating the treatment situation of ACHD patients in Germany are not available.

[学科分类] 儿科学

[关键词] transition;congenital heart disease;online survey;adult with congenital heart disease;treatment;lost to follow-up;National Register for Congenital Heart Defects